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 DIRECTORY/Health/Fitness/Diseases/Rare Disorders/Pierre Robin Syndrome (4)
i0Chase's Story - http://www.pierrerobin.com - Personal account of one child's experience of this condition. Includes photographs.
 
i0Contact a Family: Pierre Robin Syndrome - http://www.cafamily.org.uk/Direct/p24.html - Main features of the condition and possible causes.
 
i0NORD - Pierre Robin Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome - Sample report, plus links to organisations. [Fee required for full report]
 
i0Pierre Robin Network - http://www.pierrerobin.org - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
 
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